This is just a quick post before we leave for PA. We have decided to leave at 5am and hope that Zoe sleeps for most of the car ride. Zoe has been having a tough week. She has not been eating very well but is drinking out of her cup like a champ. So at least she is well hydrated. Initially we thought she caught chicken pox from daycare, but her few spots look more like a heat rash and have not spread or gotten worse since Sunday. Zoe is also cutting a new tooth, so perhaps that is the reason for her fussy mood. No fever, so we figure we will hold off going to the doctor. When Zoe is sick, we have the added stress of worrying about her getting enough calories. It is obvious that she has lost some weight this week and we are feeling nervous about Zoe's appointment on July 7th. Zoe continues to get weighed on a monthly basis and has only gained 100 grams since last November. Talk about pressure on us to get her to eat! We are trying to push those thoughts to the back of our minds, but it is hard not to worry when she is not eating much and we can see she has lost some weight. But we know the doctor can't tell us anything we don't already know- keep her hydrated, keep watching her, keep trying to feed her, etc. Also frustrating is that Zoe had finally stopped arching so much and was sitting on her own for twenty seconds at a time. This week though, Zoe is arching more than before since she is not feeling well. So, we haven't done much PT and are just focused on keeping her comfortable and eating. It is hard not to get frustrated with Zoe when she is arching out of my arms and smacking me in the face. But I remind myself that it must be even more frustrating for Zoe since she is the one who can not communicate what is wrong and does not understand why she feels this way. I am glad that both Gavin and I work in health care and feel comfortable and confident in providing her care when she is like this. Hopefully she will get some rest in the car and feel well for visiting all of our friends and family this week. It is going to be a busy week for her and we know she will be overstimulated at times. We really look forward to seeing all our friends and family so we can show Zoe off. We are just so proud of her.
We will be sure to post some pictures from Uncle Joe's wedding when we return.
The Home of the Brave
2 weeks ago