Pictures from 2nd Annual 1P36 Conference in Boston, MA

Sequoya playing with Zoe's FP rings. These were a big hit at conference. It was interesting to see how the kids played with the rings. All of the kids insisted on putting the smallest ring on first and then stacking the bigger rings on top of it.

Amaya and Abby

Amaya and Emma

Nate, Melanie, and Whitney riding the T on the way to the aquarium. Whitney kept getting so excited, she would clap her hands.

Elisha, Sequoya, and Carl. Someone on the train recognized that our kids looked alike and asked us if we were going to a family reunion.

Kim and Amaya on the T. Amaya kept getting so excited she would flap her hands.

Genevieve and Zoe looking at the Jellies at the Boston Aquarium. Zoe did not pay much attention to most of the fish or the penguins since there was not a lot of contrasting colours. She did, however, love the jelly fish and kept trying to grab them.

These are just some of our many pictures taken this year at conference. We took some great footage of Zoe playing with the other kids, but unfortunately it turned out too dark since we took the video on our still camera. We are really glad we got to go again this year. We enjoyed seeing old friends as well as meeting new families. As I mentioned before, going to conference is a bit emotional since it brings forward the reality of what we will be facing with Zoe. However, the reality of the families we have met has been much less bleak than the reality we read in the articles when Zoe was first diagnosed. And we have learned so much from the other families on the list serve. So, we feel very lucky to have this support. If you want a run down of the conference speakers, check out Whitney's blog- the link is on the right. We look forward to going to conference again next year. We have decided that going to conference every year will be one of our family vacations. Although it is difficult at times to get that dose of reality at conference, it is so important for us to keep up with other families going through the same things as we are. There is such a bond between the 1P36 families since we are all in this together. We invite any of our family and friends to join us next year (or if you can't make it next year, you are always welcome) in Indianapolis the second weekend in August.