Zoe came home on Tuesday. She ended up staying a few extra days because she had a fever and they wanted to make sure it was not an infection from the g-tube. The day after Zoe came home she was ready to go! This is us walking at the park. This park has a great fountain Zoe loves but we made her just touch the water with her hands, not get soaked under it like she loves. We didn't think getting the bandages soaked in a public fountain would be the best thing for a new surgical site! Zoe has been doing great- she is tolerating all the tube feedings and still eating lots of food with her mouth. The tube feedings do not seem to curb her appetite at all which is great- that is what we hoped for. Zoe will still eat as much as she always has (which is quite a lot for a child her size!) and the tube feedings will just be extra calories to boost her growth. When Zoe is sick, we can use the g-tube for hydration the same way we used the nasal feeding tube in the past. And if Zoe is really sick and does not have the strength to eat, we will have the tube ready to go and she does not have to go through the procedure of us shoving a tube down her nose.
As always, Ailsa has done amazing with all these changes going on. She visited Zoe in hospital and they loved playing together. The picture below is from the rooftop patio at the hospital. Zoe loved sitting outside in the shade. The fresh air was great for her lungs which became a bit junky after the anaesthesia and laying around in bed. Normally we would give Zoe chest physio which involves hitting her back firmly. We did not want to do this and cause Zoe pain at the incision site so her sitting up and getting fresh air was very important to clear her lungs. At first, sitting up was painful for Zoe but luckily she had a little sister to help distract her!
I Want to Be Zoe!
Ailsa always says, "I don't want to be like Zoe, I want to BE Zoe!" Here is a picture of the girls both playing in walkers. Zoe is in her new walker and Ailsa is in Zoe's old walker. As you can see, the new walker is quite a bit bigger than the old one which is why the new one does not fit in our car if we are carrying anything else. We love how fast Zoe can go in the new walker. It also supports her in a more upright position which is great for her spinal development. Ailsa often says, "Zoe's new walker is too fast." It is not often you hear that complaint about disability equipment!