Wednesday, June 27, 2018

Zoe- the Bouncing Ball

I think Zoe must get her determination and fight from her dad, Gavin.  Like her daddy, Zoe surprises doctors and keeps on fighting when we all begin to have doubts.  I was chatting with another 1p36 mom.  Sadly, her daughter died a few years ago but like Zoe she amazed doctors with how well she would recover from illnesses.  It is amazing how these kids can bounce back.  One week Zoe is in the ICU and very sick, the next week she is home. Zoe is not 100% yet.  She lost weight, she is very shakey and her energy levels are down.  But considering where she was, we are all very happy with how she is doing now.  Zoe was extremely excited to go to school this week so she will not miss out on her last week of school.  She told me last night at dinner that so far this week has been "party, party, party and NO work!"

 June 18th- Zoe is home and playing with her sisters.

June 15th- Ailsa visits Zoe in the ICU.  3 days earlier!  What a difference!  Ailsa just climbed right in to bed with Zoe.  Tubes and medical equipment do not scare her.  All she sees is her big sis and she was so happy to see Zoe alert she climbed in for a big hug and some whispering secrets.  Who knows what those girls talk about?  When Zoe was moved to a regular floor the next day, Ailsa was again in bed hanging out with Zoe so the transportation staff told her she could stay there and travel on the bed with Zoe.  Both girls thought this was hilarious.

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