Ailsa had a really hard time with this hospital stay. She has a lot of fear about Zoe dying. She does amazing expressing herself and asking questions. It is heartbreaking to tell her the truth she already knows. We don't know anything for sure, we don't have the answers but the truth is, yes- Zoe was a lot sicker these past two hospital stays and yes, it is possible for Zoe to get sick and not recover. Yes, it is possible that Zoe could die.
Zoe also shares these fears in the moment when she can not breathe. She was really scared this time. I think the memory of being intubated was fresh in her mind. But Zoe seems to forget about that fear once she is home. She is able to really live in and enjoy the moment. We all strive to do the same.
Here are some pictures from our backyard when Zoe was home for those few days. We have not been able to do much this summer, we haven't been able to travel far, but the time we do have we have enjoyed spending as a family.
The playstructure from Million Dollar Smiles is still used almost daily when we are home. You can see by the smile on Zoe's face, she still LOVES swinging.
Willow is enjoying the slide. Grandad, as always is willing to jump right in and play. As Grandad ages, he has not been able to do as much of Zoe's medical care, but we are so glad he is here to just be Grandad. The girls love spending time with him.
Happy July 1st! The local park did not have fireworks this year so we had some in our own yard. This was the first year Ailsa was able to be around and enjoy fireworks. She loved the sparklers. Zoe enjoyed them too but was having a hard day because she was getting sick again.
We also have a blow up pool in the backyard now that the girls are loving. Zoe is able to use her new life vest float and swim on her own in the water. Since the water is not very deep, she is more bum scooting swimming, but she loves it because she can do it all on her own. We haven't managed to get any pictures of the girls in the water since its all hands on deck when all three of them are in the pool!